2025/12/31 發佈
重要公告:本會即日起終止與可達整合行銷顧問有限公司之合作關係
2025/12/31 發佈
本會作為SMA Asia的一員,非常感謝大家一路以來的陪伴與支持,讓台灣SMA病友取得了救命藥。
在爭取藥物的過程中,SMA Asia的夥伴們給予了我們非常大的助力,資訊交流、建議提供,也在第一時間參與了我們發起的倡議連署,讓我們在困難的時刻,有了最溫暖的力量。
本次賀卡中呈現的藝術作品,皆由亞洲各地的SMA病友用心創作與提供,本會特邀周語軒共同參與、提供美好作品。這些作品展現了韌性、希望,以及跨越國界、凝聚我們社群的集體力量。
未來我們也將繼續攜手同行,給予SMA家庭更多的支持!
最後送上我們最誠摯的祝福,祝願大家新年快樂、健康平安!
As a member of SMA Asia, we would like to extend our deepest gratitude to everyone for your continued companionship and support. Because of this collective effort, SMA patients in Taiwan have been able to gain access to life-saving treatments.
Throughout the journey of advocating for access to medication, our partners in SMA Asia provided us with tremendous support—through information sharing, valuable advice, and by promptly joining the advocacy petitions we initiated. In our most challenging moments, your solidarity became our greatest source of warmth and strength.
The artworks featured in this greeting card are all thoughtfully created and contributed by SMA patients from across Asia. Our association is especially honored to invite Chow Yu-Hsuan to participate and share her beautiful work. These creations embody resilience, hope, and the collective strength that unites our community beyond borders.
Looking ahead, we will continue to walk this path together and provide even greater support to SMA families.
Finally, we send our sincerest wishes to you all—wishing everyone a happy, healthy, and peaceful New Year!